Prevent Blindness provides free resources on Stargardt disease,
including a webpage, fact sheets, expert interview video and social
media graphics, to educate the public and professionals on the
inherited retinal disease
CHICAGO, May 21, 2024
/PRNewswire-PRWeb/ -- Prevent Blindness, the nation's leading
nonprofit eye health and safety organization, has created new
educational materials on Stargardt disease, a form of inherited
retinal disease (IRD). Coinciding with May's IRD Genetic Testing
Awareness Month, Prevent Blindness now offers a dedicated webpage,
fact sheets, a new Focus on Eye Health Expert Series episode, and
social media graphics. The effort is supported by funding from
Alkeus Pharmaceuticals, Inc.
Stargardt disease is sometimes referred to as Stargardt macular
degeneration, Stargardt macular dystrophy or juvenile macular
dystrophy. Stargardt disease affects central vision due to a
buildup of fatty material in the macula and is most commonly caused
by a variant in the ABCA4 gene. According to the Cleveland Clinic,
there are an estimated 30,000 to 200,000 people with Stargardt
disease in the United States.
The most common symptom of Stargardt disease is a slow loss of
central vision in both eyes. Other symptoms may include:
- Dark, gray, black, or hazy spots in the
center of your vision
- Sensitivity to light
- Blurry vision that cannot be corrected
with glasses
- Difficulty seeing small details
- Needing more time for your eyes to
adjust between light and dark places
- Difficulty seeing in the dark or low
light
- Color blindness
- Lack of depth perception
- Lack of contrast
As part of its Focus on Eye Health Expert Series, Prevent
Blindness offers the new episode, "Stargardt Disease," featuring
Elias Traboulsi, MD, MEd, Pediatric
Ophthalmologist and Geneticist, Department of Ophthalmology,
Cleveland Clinic.
Genetic testing is important for IRD diagnosis, including
Stargardt disease. It may help to identify potential treatment
options and create clinical trial opportunities for patients, as
well as inform them about the potential risk of disease to other
family members. To learn more about IRDs and benefits of genetic
testing, visit Foundation Fighting Blindness at
FightingBlindness.org/genetic-testing.
"Although there is no known cure for Stargardt disease today,
there is promising new research being conducted through clinical
trials," said Jeff Todd, president
and CEO of Prevent Blindness. "We encourage patients to speak with
their eye doctors about their risk for Stargardt disease and other
IRDs, as well as how to complete genetic testing to determine the
best treatment path to preserve their vision."
For more information on Stargardt disease, please visit
PreventBlindness.org/stargardt-disease. For additional information
on inherited retinal diseases and genetic testing for vision
issues, visit PreventBlindness.org/inherited-retinal-diseases.
Alkeus Pharmaceuticals also offers the free online resource, "Your
North Starg," designed for people living with Stargardt disease,
their families, and care partners, to provide educational
information and support.
For information on clinical trials specifically for eye disease
and vision, please visit PreventBlindness.org/clinical-trials.
About Prevent Blindness
Founded in 1908, Prevent Blindness is the nation's leading
volunteer eye health and safety organization dedicated to fighting
blindness and saving sight. Focused on promoting a continuum of
vision care, Prevent Blindness touches the lives of millions of
people each year through public and professional education,
advocacy, certified vision screening and training, community and
patient service programs and research. These services are made
possible through the generous support of the American public.
Together with a network of affiliates, Prevent Blindness is
committed to eliminating preventable blindness in America. For more
information, visit us at PreventBlindness.org, and follow us on
Facebook, X, Instagram, Threads, LinkedIn and YouTube.
Media Contact
Sarah Hecker, Prevent Blindness,
312.363.6035, shecker@preventblindness.org,
PreventBlindness.org
Twitter
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SOURCE Prevent Blindness