NIH All of Us Research Program Reaches Milestone of the Largest LGBTQIA+ Health Dataset Powered by Vibrent Health’s Research Software
2024年6月29日 - 7:39AM
ビジネスワイヤ(英語)
Enrollment of LGBTQIA+ participants in
ambitious population genomics study soars to nearly 40,000 using
Vibrent’s digital platform
Vibrent Health, a leading software-as-a-service company in the
field of precision genomics research, announced today the creation
of the largest research dataset of individuals identifying as
LGBTQIA+. Vibrent's technology collaboration with the National
Institutes of Health (NIH) All of Us Research Program facilitated
this historic milestone.
“The fact that the program is even asking about gender identity
and sexual orientation from one million people is historic,” said
Mitchell R. Lunn, MD, MAS, FACP, FASN, associate professor of
medicine and of epidemiology and population health at Stanford
University School of Medicine. Dr. Lunn also serves as co-director
of PRIDEnet, an All of Us national community engagement partner
focused on engaging members of the LGBTQIA+ community. “These data
provide researchers the opportunity to better understand the health
needs and experiences of communities.”
Vibrent's digital platform enables participants to consent to
donate their biosamples, along with additional phenotypic, clinical
(EMR), wearables, and real-world data to the comprehensive All of
Us dataset, which is used in thousands of research studies across
the nation. Vibrent’s platform also provides individuals access to
the genetic results returned through the program. "Vibrent Health
played a critical role in developing the tools that enabled deeper
assessment of sex at birth, gender identity, and sexuality,” said
Mark Begale, Lead PI for the Participant Technology Services
Center.
“Building a dataset of this size, representing a community as
diverse as the LGBTQIA+ community, demonstrates the importance of
inclusiveness and trust-building in research. Using digital methods
augments the important work done in communities and allows research
programs like the All of Us Research Program to scale to a size of
this magnitude,” said Praduman (PJ) Jain, CEO of Vibrent.
To discuss potential collaborations in health or clinical
research, visit https://info.vibrenthealth.com/request-a-pilot.
About Vibrent Health
Vibrent Health develops digital health technology and research
tools for health organizations, researchers and research
participants. Powering the next generation of precision medicine,
Vibrent’s scalable technology platform for individual and
population health provides actionable insights to help accelerate
medical discoveries. Vibrent Health is proud to serve, since 2017,
as the Participant Technology Systems Center for the National
Institutes of Health’s All of Us Research Program, which aims to
collect health data from 1 million or more people to support a wide
variety of research studies. Since 2020, Vibrent has also
collaborated with numerous organizations to conduct a variety of
research initiatives spanning several topics, including precision
medicine, cancer, COVID, substance abuse, aging, and fertility,
among others. To learn more, visit vibrenthealth.com.
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Molly Bryant mbryant@vibrenthealth.com / 843.814.8623