FDA Chief Scientist/Principal Deputy
Commissioner, Google Senior Medical Lead, PurpLE Health Foundation
CEO, and other health care thought leaders discuss barriers &
best practices for pediatrics, adolescents, seniors, women,
under-served populations
WASHINGTON, May 8, 2024
/PRNewswire/ -- Leading health care experts asked health care
providers and policymakers to keep patients of all ages at the
center of their decision-making process during the National Health
Council (NHC) 2024 Science of Patient Engagement Symposium.
The conference, entitled, Patient Experiences through their
Lifespan, held May 8-9 at the
National Press Club, brings together more than 180 policymakers,
researchers, patients and patient advocates, and health care
providers.
The Science of Patient Engagement Symposium explores standards
and best practices that ensure every patient has legitimate input
in their own medical care and that patient research results are
applied equally to all individuals. Today's Symposium also explores
meaningful patient engagement, defined as patients who are
recognized as equal partners and integrated in the development
phases of science, research, and drug regulation.
"This Symposium uniquely convenes leading experts from diverse
sectors to ensure that patient perspectives and needs are front and
center in our fast-changing health care system," said Randall L. Rutta, NHC CEO. "By identifying
barriers to proper patient engagement and developing and scaling
best practices, we can better drive patient centricity in research,
diagnosis, and treatment for individuals of every age and every
demographic. This critical focus and action agenda is what this
Symposium is all about."
Namandjé Bumpus, PhD, Chief Scientist & Principal Deputy
Commissioner, U.S. Food and Drug Administration (FDA) provided
attendees with a briefing on the agency's medical and health care
priorities and reaffirmed the FDA's commitment to patient-centered
care.
Kapil Parakh, MD, MPH, PhD,
Author & Senior Medical Lead at Google discussed the need to
thoughtfully address the needs of patients as we enter a new era of
technology and Artificial Intelligence (AI) in health care.
Anita Ravi, MD, MPH, MSHP, FAAFP,
President, CEO, and Co-Founder of the PurpLE Health Foundation
addressed the importance of engaging and including patients who are
survivors of gender-based violence to the research discussion.
"Individuals across the age spectrum have unique perspectives
and objectives for their health care," said Jeff Todd, President and CEO of Prevent
Blindness and Chair of the NHC Board of Directors. "We must
constantly evaluate the intersection of age and health care
strategies and communicate effectively and transparently with
patients to amplify their distinctive point of view and ensure
their goals are being met."
The Symposium's impressive lineup of speakers addressed the
most important issues in patient engagement, including:
- The unique needs of pediatric and adolescent patients and
caregivers.
- The realities of adult-based care for women's
research.
- Expectations and issues for partnerships in research for the
transition of care from adolescent to adults.
- Shining a spotlight on ageism in the health care
system.
The Science of Patient Engagement Symposium is an annual event
where research leaders convene to share their experiences,
accomplishments, best practices, and resulting translational
impacts on the science of patient engagement.
About NHC
Created by and for patient organizations more than 100 years
ago, the National Health Council (NHC) brings diverse organizations
together to forge consensus and drive patient- centered health
policy. We promote increased access to affordable, high-value,
sustainable health care. Made up of more than 170 national
health-related organizations and businesses, the NHC's core
membership includes the nation's leading patient organizations.
Other members include health-related associations and nonprofit
organizations including the provider, research, and family
caregiver communities; and businesses representing
biopharmaceutical, device, diagnostic, generic drug, and payer
organizations. Learn
more at: https://www.nationalhealthcouncil.org.
Contact: Jennifer Schleman
JSchleman@nhcouncil.org
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SOURCE National Health Council